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Jayden’s Story

Jayden’s Story

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When Jayden was born in March, I knew instantly that something wasn’t quite right. Those first couple of feeds soon projected from his tiny mouth and all over his new baby grow. Frustrated, I asked the nurse for advice who force fed him and that soon ended up all over her. Nevertheless, they insisted it was just mucus and he would be fine in a few weeks.

A few weeks later, his symptoms worsened again and I contacted my health visitor for advice. I was blown off yet again, told to try him on a different formula and that the one I was using wasn’t agreeing with his stomach. Again, nothing improved and after countless visits to my GP, they labelled me as an over anxious first time mother because he was gaining weight normally and seemed happy, the reality was – every single feed he would throw himself around violently, burping him was a mission involving several large towels and a change of clothes. Eventually, after they starved him by mixing Gaviscon with Comfort formula and much persistence they agreed to send him to a paediatrician.

By the time he was seen, he was 16 weeks old. They confirmed that he had reflux and put him on Zantac and told me to start weaning him the second I got home and assured me he would outgrow it by 6 months to a year at the latest.

The symptoms continued to worsen as Jayden got older, at 6 months they changed him onto a stronger medicine called Zoton. By 9 months, I had removed all dairy from his diet seeking answers to his reflux and a new paediatrician decided he was cows milk intolerant. However, by the time he was 1, things had worsened again and Jayden was sent for a batch of tests which all came back as negative.

Jayden is now 20 months old and he still suffers badly with reflux, we have no answers to why he has reflux and why it is so bad. All I can say is trust your instincts and don’t back down until you get what you feel is right for your baby. At the end of the day, a mothers instinct is better than any doctors because half of them don’t know what they are talking about!

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About Author

Jonathan

As well as being one of the founding members of refluxSUPPORT...Jonathan is a Board Member and trustee of Living with Reflux – the only UK Charity for infants with reflux related conditions.He is also a stakeholder in the National Institute for Health and Care Excellence (NICE) – Gastro-oesophageal reflux in children and young people.He has three daughters of which the eldest is now seventeen. Two suffered from severe reflux.